~ BIONIC DEE ~

We Can Rebuild Her……..we think

Push Girls

on August 7, 2012

Push Girls: FEARLESS WOMEN WHO DON’T LET THEIR DISABILITIES STOP THEM:

Push Girl Nominee Alana (Lana) Little


Alana Ashley Little (Lana)

Nominated by Little Miss Wheelchair Texas 2012

While Alana Ashley Little (Lana) may not meet most people’s definition of a Push Girl because she’s only eight years old, the reality of it is that she will probably not live to be an adult. Our Lana’s a fighter…she’s had to be. She was born into a world of mental illness, homelessness and drug and alcohol abuse. During her infancy, she never saw a pediatrician…never had her immunizations…never had formula…her world was a literal hell. We (her maternal grandparents) were able to win custody of Lana and her little brother, Alex in 2005 when she was fifteen months old and Alex was four months old. Just as we were all settling in to our new lives, Lana was diagnosed with Ataxia Telangiectasia (A-T). A-T is a rare (about 500 cases in the USA and 1,000 worldwide), recessive genetic disorder that hides in the genes of those who carry it. Imagine having a disease that combines the very worst symptoms of Muscular Dystrophy, Cerebral Palsy, Cystic Fibrosis, an immune system deficiency and a 1,000 times greater chance of having cancer than the general population. A-T is neuro-degenerative and is progressive…there is no cure or treatment for A-T…it is fatal. (Lana and Alex’s mother, our daughter died on June 27, 2009 of a drug overdose. Their father’s paternal rights have been terminated.) Lana’s cerebellum has been destroyed by A-T…her immune system is no longer functioning, so she receives subcutaneous immunoglobin infusions each week at home (three needles in the stomach). She began using a wheelchair at the age of two to head off the crushing fatigue that A-T has caused. She made the move full time to her chair at the age of seven because she could no longer control the muscles in her body. While the drugs and alcohol that she was exposed to prenatally did not cause her A-T, they have certainly exacerbated it. Despite everything she’s endured in her short life, Lana is an inspiration to many…she has testified at our State Capital for the preservation of Medicaid…she was actually recognized on the Senate floor for her work…together, we educate others on children with disabilities. She loves nothing more than putting her chair on high and flooring it…laughing like crazy all the way. Lana is frustrated by people who feel sorry for her or pity her…that’s not what she’s about! She lives her life on her terms…and really, isn’t that the epitome of a Push Girl?

 

Advertisements

You don't need to be a blogger to leave me some love

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Hiking Photography

Beautiful photos of hiking and other outdoor adventures.

I Wore Yoga Pants To Work

We Can Rebuild Her........we think

Brenda Lee

~Memoirs from the heart~

Travels with the Blonde Coyote

Follow the Blonde Coyote and see more of the world!

Nineteenfifteen

Know thyself

In "Nature"... I Believe

~finding faith and inspiration in nature

FilmGordon

A Year in the Life of a True Film Addict!

griefministerdotcom

Embracing Grief with Hope and Promise

Trend.Shook.co

Shook. Community powered.

The Sexy Single Mommy

Giving it to you straight with no chaser

graphite ventures of the mind

difference is naught we venture.

Pibbles & Me

Spreading Love One Pic At A Time

overworked supermom

We Can Rebuild Her........we think

We Can Rebuild Her........we think

MessyDirtyHair

We Can Rebuild Her........we think

We Can Rebuild Her........we think

a flock of crows

a cacophony of rants, reviews and bird feathers

Dave Farmer

Science Fiction & What-If Author

The Daily Post

The Art and Craft of Blogging

Thelonelyship

Confessions of a bald guy. Personal blog.

SwittersB & Exploring

Photography, Fly fishing, Life, Visuals & Fun

We Can Rebuild Her........we think

Filing Jointly...finally

We Can Rebuild Her........we think

Stream of the Conscious

Highlighting the headaches and hilarity that come with raising tiny twins.

All Fooked Up

We Can Rebuild Her........we think

To Be Aware

It's all about disbelieving your thoughts

simple-politiks.com/

The Independent Political Website ~ Plain & Simple Politics

Mind of Andy

Improve society through insights & life quality!

Living and Lovin

Living Life surrounded by all I love. PEACE

We Can Rebuild Her........we think

You Know it Happens at Your House Too

We Can Rebuild Her........we think

I Want a Dumpster Baby

We Can Rebuild Her........we think

ChecklistMommy

Love me, love my lists.

Perception is Everything

We Can Rebuild Her........we think

sugar coated angel

Beauty is within

theblackandwhitedragonfly

To the stolen heart

Ray Ferrer - Emotion on Canvas

** OFFICIAL Site of Artist Ray Ferrer **

Breathe In, Write Out..

My Life in Inklings by N. Knight

withheldindarkness

Poetry, creative writing, songs all in the words of ...

||carlysarah

aspiring storyteller dabbling with words, quotes, and phrases | i believe language to be one of the most beautiful of things in this world, if used properly and with good intention.

River Song

Sylvie Ashford's art and poetry.

Ethereal Heights

a blog by Sharmishtha Basu (Agnishatdal, Agnijaat, Indie Adda and Agnijashatadalama)

Defy Society

We Can Rebuild Her........we think

Molenda's Musings

I'm a Molenda, and these are my musings

NealEnJoy

Exploring and Encouraging a Healthy Life Marked with Joy

%d bloggers like this: